We remember our family members, friends, and loved ones who have been lost.
If you have lost a loved one to SUDEP or another epilepsy-related cause, we offer you our deepest condolences. We are here for you during this confusing and tragic time, and can help with resources and support so that you do not have to face this alone.
- Accurate information regarding SUDEP and other causes epilepsy related deaths.
- Individual or family support from a bereavement support facilitator who is also a mother who lost her daughter to SUDEP.
- Online Bereavement Support Groupdesigned to help families connect with others who have lost a loved one to epilepsy in a safe and confidential environment.
- This remembrance page, where families can create a memorial or honorarium webpage to help families share their story to help raise awareness and understanding of SUDEP.
- A Remembrance Wall at our Strides for Epilepsy 5K.
- Advocacy, as needed on a case-by-case basis, which includes coordination and assistance with the death investigation process.
- Access and assistance in enrolling and participating in SUDEP-related research opportunities.
Tyler J Stevenson
May 21, 1990 – January 23, 2011
By Mark Stevenson
Seven years ago our 20-year old son, Tyler, passed away from SUDEP (Sudden Unexpected Death in Epilepsy) and we found ourselves in the unimaginable situation having to communicate with the coroner’s office, take care of the funeral arrangements, the life insurance, remove his name from junk mailing lists, place notices with credit bureau agencies, etc.