In Memoriam

We remember our family members, friends, and loved ones who have been lost.

Bereavement Support

If you have lost a loved one to SUDEP or another epilepsy-related cause, we offer you our deepest condolences. We are here for you during this confusing and tragic time, and can help with resources and support so that you do not have to face this alone.

  • Accurate information regarding SUDEP and other causes epilepsy related deaths.
  • Individual or family support from a bereavement support facilitator who is also a mother who lost her daughter to SUDEP.
  • Online Bereavement Support Groupdesigned to help families connect with others who have lost a loved one to epilepsy in a safe and confidential environment.
  • This remembrance page, where families can create a memorial or honorarium webpage to help families share their story to help raise awareness and understanding of SUDEP.
  • A Remembrance Wall at our Strides for Epilepsy 5K.
  • Advocacy, as needed on a case-by-case basis, which includes coordination and assistance with the death investigation process.
  • Access and assistance in enrolling and participating in SUDEP-related research opportunities.
Call 800-332-1000 and press 1 or email sudep@efa.org to learn more about our services. In addition to supporting families bereaved by epilepsy, the National Epilepsy Foundation’s SUDEP Institute leads education and awareness efforts targeted to people living with epilepsy and their caregivers as well as medical professionals, including members of the death investigation team. We also drive and support research into the causes and prevention of SUDEP. Learn more about these programs and how you can become involved. To share your memorial with us, please email caremanager@epilepsycolorado.org
In Remembrance

Tyler J Stevenson

May 21, 1990 – January 23, 2011

By Mark Stevenson

Seven years ago our 20-year old son, Tyler, passed away from SUDEP (Sudden Unexpected Death in Epilepsy) and we found ourselves in the unimaginable situation having to communicate with the coroner’s office, take care of the funeral arrangements, the life insurance, remove his name from junk mailing lists, place notices with credit bureau agencies, etc.

Read the Full Story